In my nearly 16 years of being diagnosed with a chronic illness, I’ve had a few people, perhaps concerned, perhaps in morbid curiosity, ask what it’s like to navigate this illness. Some background: One day when I was 12 years old, I woke up feeling feverish, achy all over, and with just a general feeling of malaise. Days and weeks went by and the pain got worse, my joints began to swell and lose range of motion. Even worse though was the barrage of clueless doctors and endless tests to endure as my family and me tried to figure out what was happening to me. After about six months of confusion and little answers (not to mention, excruciating pain), I was finally referred to a rheumatologist for children who diagnosed me with Juvenile Rheumatoid Arthritis (now called Juvenile Idiopathic Arthritis) of the polyarticular type (meaning many joints are affected, not just one or two like in most cases). In the time it took finding my diagnosis, I had lost most of my mobility, independence a...
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